Well I found that out the next morning. I woke up with a splitting headache that was making me physically sick. NOT FUN. I hadn't felt that way since the summer. I had rather enjoyed not feeling that miserable. I finally made it upstairs to the living room but couldn't make it to the kitchen (another 20 steps) to get my steroids. I collapsed on the couch and started crying. I felt like my brain was trying to escape from my skull. I finally got to the kitchen and was able to take my steroids. And then made my way back to the couch and collapsed.
My roommates Cherelle and Kelley are awesome, Cherelle made me a AB & jelly sandwich and got me crackers and water before she left for work and Kelley replinished my water supply before she left for school later thst morning. Cherelle also called Jana (my colorado mom) and told her about what was going on, little to my knowledge. I eventually texted Jana telling her I wasn't feeling well and before she had a chance to respond Ariel (her daughter in law) was knocking on my door. She had come over to help me out. She made me soup and tea and we watched a movie. I am so appreciative of her, it really was nice to have someone here with me even if we weren't doing much of anything!!! Then Jana came over and made me soup and got me a smoothie. Once again I am so thankful for this wonderful woman who does so much for me! I just hope that I can return the favor to her and to so many others.
So basically I spent the whole day on the couch, occasionally getting up to use the restroom and to get more water. I took a couple of naps on the couch. It seems like the only way to get rid of the headache was by sleeping, the steroids weren't kicking in very fast. By the end of the day I was feeling better than what I had been that morning but I still hadn't gotten back to normal. I really just wanted to sleep on the couch because I was worried that the physical process of laying down would make me sick (because it had a couple of times earlier in the day)
I woke up this morning with a slight headache, but being the smart woman I am I had taken my steroids and water downstairs to my bedroom with me.
I never want to miss/forget a pill EVER again! I was amazed at how much just a 0.25 mg tablet can make in how I feel, especially since I had started off with 4 mg and had weaned myself off of them 0.5 or 0.25 mg a week. I'm pretty sure I'm going to be staying at my 0.25 mg for awhile. I can deal with my weight gain and my chubby cheeks. I would take those any day over what I experienced yesterday.
I'm not too horribly worried about the headaches, of course I wish I didn't have to deal with them at all. I had an MRI on the 26th of October and the results showed no new growth. Which is pretty awesome! Praise God, thank you Lord! My oncologist seems pretty encouraged by the results. The Avastin is suppose to cut off the blood flow to the tumor cells and keep them from having the nourishment needed to continue growing. They only looked at my lumbar spine and brain. The next scan, 3 months from now, will be a full scan of my brain and spinal cord.
