Thursday, January 20, 2011

Latest health update and preparing for my orals

Health update:
The Dr.'s appointment at the beginning of January went well. Dr. Dameck has me working my way off of steroids VERY slowly, half a mg a week which is totally fine with me coming off of it so slowly. I have a lot going on over the next month and I want to make sure I have the energy to do it all along with making sure I don't have any relapses in headaches. If the headaches come it just knocks me out and then it is hard for me to concentrate and get anything done.

My next MRI, doctors appointment and infusion is scheduled for the 1st of February.

My infusions are going well. Ingrid is my all time favorite infusionista! I always ask for her when I come in. She can get my veins the very first time by using her floating technique. She is probably close to me in age and is from Montana we always just spend some time chatting about life. She is so sweet! All of the people in the infusion center are great. They make it a point to know you and do anything they can to help you out. I am so encouraged by them every time I go in.

Things with insurance is finally getting all worked out!!! The insurance company now has my claim form and as for this next semester I am all signed up for I got my referrals in and my claim form is signed!

Orals:
I'm getting kinda stressed over orals. I'm not quite done with my paper or presentation but am getting awfully close. It needs to be done though! I need to start practicing my talk and making sure I know the things I need to know when they drill me for two and a half hours with questions :/ I think the question part of it is what is freaking me out the most. I can handle the paper and presentation I am just to the point in those areas of having to do my least favorite part of it so it is hard to stay focused on it and keep from getting frustrated when it isn't coming along so well. Also I know that I can be a perfectionist and so every time I go through my paper and presentation I know there is so much more I could add but I really should have someone else look at it. There is just so much I feel like I need to know before I do my orals that it gets over whelming and I don't know how I'm going to every get it all done. But some how I will and if I fail I still have another chance to do them again.

Other things in life:
The more stressed out I get it seems the more time I spend with God. I am currently reading the Bible through in a year and I treasure this time with God. The past few days have been about Joseph in Egypt. It is amazing how God used Josephs brothers jealousy to bring about their salvation and it reminds me that although I am going through this difficult time how God can use it for his purposes. Also how Joseph was put in jail for a 'crime' he didn't commit. I don't know what those purposes are but I desire to be His instrument even if it means through even tougher situations. I know that there will be seasons in my life that will be more difficult than the ones I am enduring now, there is so much left for Him to teach me about so many different things in life. I want Him to ever be molding and changing my heart to be more like His and that is not going to be an easy process.

My house is clean! I was accepted for cleaning for a reason. It is a volunteer service given to women with cancer. What happens is a cleaning company volunteers their services and comes in and cleans your house for you once a month for a specified amount of time. I hate to admit this but since I have lived in my house I have not vacuumed the downstairs part of my house. I have been able to keep the main area fairly clean and I keep the downstairs clean but as for doing the things I would normally do every week (vacuuming, dusting, cleaning the bathroom etc) it just does not get done on a regular basis ever and there just didn't seem like there was going to be a time in the near or even not so near future that it was going to be happening. So I finally broke down and applied for the service and let me tell you, it is so so so so SO nice to have a clean house!!!

Monday, January 3, 2011

Christmas Highlights

*Seeing our cousin Chrystal and her new daughter Laiken (3 months old)

*Having my family see me “break down”. I had worked myself too hard that day so I was up in my room resting and crying because there was so much I felt I needed to do and was so frustrated that I couldn’t do everything and was letting everyone down. So I made them all surround me and give me a hug.

*Having a picnic style Christmas Eve dinner in my room so that I could continue resting before we started opening presents.

*Making Michael work for his call of duty game. We set up a mission for him by coming up with clues leading him to different places around the house where he had to scout out the army base and destroy it using my nephews little army men and a Nerf gun. Once he found the camp and destroyed it the clues to the next base were written on the bottom of the army men.

*Playing bingo with my nephews.

*Possibly having a new tradition of eating breakfast at mom’s on Christmas morning.

*Christmas at grandmas with the whole family!

*Seeing Tracy and Emma

*Playing games with mom, grandma and dad most mornings. Mom actually beat me at skip-bo and rummikub

*Seeing everyone at church both Strafford and Fair Grove

*Having dinner with Brenda, Ally and Megan the family Laura and I used to babysit/nanny for. They have grown up so much!!

*Seeing my friend Amanda, a friend from back in middle school, and her absolutely adorable pregnant self!

*Seeing Andrews new house and getting to spend some time chatting with him.

*Family game night. I am horribly bad at French charades….

*Chronicles of Narnia The Voyage of the Dawn Treader in my opinion the absolute best so far. I love how open they were about God. I was crying by the end of it.

*Going to the DAV with Dad. I had never seen him leave church so fast after service.

*Steak-n-Shake, Andy’s, Mud House and cashew chicken.

*Getting family portraits taken.

*Getting to see Rebecca my friend from church starting in middle school.

*Getting to see Sarah, a friend from college who now lives along our route from Colorado to Missouri.

*Getting to see Aunt Toni and cousin Sarah and her two kids.

*Surprising Wayland and Millie, part of our adopted family, at the church where Wayland preaches.

All in all it was a great trip. It had its ups and downs and times where we argued and cried and misunderstood each other and got stressed. But we are family and we love each other and I feel so blessed to have been able to have as much time with everyone as I did!